Here I go into the land of another blog. This time under the direction and intent to use it for my Ehlers-Danlos Syndrome struggles, travails, opinions, brick walls, epiphanies, gut-wrenching fears and bottomless streaming gratitude that strides alongside. The title comes from my Family Practitioner Dr.Grover when I was only twelve and problem after problem kept cropping up. One dislocation after another, my heart beating so fast I passed out at school, on and on. The decision was made for my Mom and I to take a trip to the Mayo Clinic to see the uber specialists and then maybe get some definite answers that a small town doc in Preston, Idaho couldn’t provide. During the visit, as he checked my stretchy skin, my extra lax joints and my heart, Dr. Grover looked at both my Mom and I and said “There isn’t much else to say other than you’re the loosest girl in town.” My Mom and I have giggled about that ever since.
I marvel at how much I laugh about EDS. I laugh a whole lot more than I cry. But, I do cry and I many times stop myself from crying because it is exhausting and frankly I get tired of being sad about EDS. Tired of being irritated and my most used word to describe my emotional state when EDS is the issue is “Cranky.” I think separating my writing this way might help. With the crankiness. I put this pressure on myself to not let the crankiness about EDS show. The pain and the disgust with “are you kidding me with another subluxation” turns into a metaphorical shoulder shrug that lasts for a week. While I laugh at the ridiculousness of it all, and hold tight all I have, and kiss my bunnies and send everyone I love a ton of messages because I’m in bed. Again.
I’m hoping I do the concept of this blog justice. I’m also hoping I’m too busy to never write another post.